Thursday, June 26, 2014

It feels Good to Laugh

Thursday evening, June 26, 2014…beautiful breeze outside and smells like Summer

So I don't know if I can put into words, how I felt today while doing Therapeutic Music.  I am so lucky to have patients of all kinds, long-term, hospice, young and old.  Each patient I see is different and demands my focus on their personal needs.  Sometimes at the end of the day I am so tired, mentally and emotionally tired.  Of all the Patients I see, my real passion is on the Dementia and Alzheimer's Patients.  I'm going to carry on a bit about how our Society is selfish and allows loved ones to be placed in these Facilities before it might be necessary.  We don't want to give of ourselves or be inconvenienced to care for an elderly or sick family member.  Granted, there are times when there is No other option, the physical demands of a very sick person can be too much for at-home care.  But I am always blown away at the number of Patients I see that really would do fine with family…and most of them DO have family!!

So this population is isolated with very little "compassionate" care.  Remember, these are Facilities with staff that come to work and leave it behind them.  Perhaps I am so passionate for this generation because I was raised with my Grandparents living with us…they moved in when I was in 4th Grade and stayed until they died in their 80's.  My Grandfather spend a few months in a Nursing Home and then was transferred to the VA Hospital where he passed away.  My Parents cared for him as long as it was physically possible.  My Grandma died in the Hospital after being very sick.  Every face I see reminds me of my Parents and my Grandparents.  They are someone's Mother, Father, Sister, Brother, Grandma or Grandpa, a favorite Aunt or Uncle.  The worst are those who have no living family….totally forgotten and left to the grow sicker and older for lack of love or an advocate on their behalf.

So now that I have depressed myself, once again…..there was a most joyous event today.  While I was waiting outside my Patient's room, I walked back and forth in the Hallway and stopped at a doorway that was very dark and had 4 Patients in the room, all male patients.  I was curious about this room so I went to the Nurse's Station and asked if these Patients would benefit from Harp Music.  Immediately 2 of the Staff said YES….at least 2 of the Patients would love it, not sure about the other 2.  So I was off….brought my Harp in and tried to adjust my eyes to the dim light.  My Harp lights had dead batteries and there was a little light from the TV and doorway…not the easiest environment to play the Harp in!

I said hello and introduced myself.  The first bed had a patient that was non-responsive, he is Patient A.  The bed on my right had a Patient that had his sheet over his head he is Patient B, the Patient next to him was awake and staring at the ceiling he is Patient C and across from him was Patient D..he was also staring at the ceiling.  No response from any of them.  I started playing my Harp very softly, so not to startle them.  I played unfamiliar music, improvising as I went along.  I noticed Patient C was watching me play so I decided to play "God Bless America", something familiar.  All of a sudden Patient C laughed so loud and so violently that it scared the hell out of me.  I looked around and wondered if I had done the right thing, coming into this room.  Perhaps I was having the opposite effect on them.  He continued to laugh and then he said, "it is so beautiful" and started to cry.  OK….I am in the right place.

Patient A did not wake up, Patient B still had his sheet over his head but I looked at Patient D and noticed he was waving his hand to the music.  At times Patient C would laugh out loud, especially if he knew the Tune.  Little by little I noticed he was singing and then Patient D started singing some of the words.  Patient B had turned over and taken his sheet off his head and was watching me play……3 out of 4 ain't too shabby!  Patient C called out, "I am laughing!"  and "it feels good to laugh".  I was so overwhelmed with joy for these men who were feeling love, compassion, memory recall and mostly joy all from the simple harp.  They especially liked it when I sang to the tune.  I am not a singer, but I love to sing anyway and they were just to tickled.

There is never a good way to say goodbye when I know I must leave.  I had stayed in this room far longer than any other.  I told them I would be back to see them and I was so happy they enjoyed the music.  They just stared at me, like I had popped their balloon.  As I was leaving down the hallway I heard Patient C singing like he was an Operatic Tenor….I got so tickled I went back into the room and told him to keep on singing till I came back.

It's so frustrating to know that there will be little else for these men until I can get back there to play for them again.  Is it our selfish society or ignorance that doesn't want to see how we house the Elderly.  The Baby Boomers will fill the Facilities within the next 10-12 years…we must make changes and advocate for compassionate and stimulating care for our loved ones.  All the living and experiences these patients have to share is a wealth of joy for us…they are funny and still have so much to give if someone would just take the time to listen.

So our generation needs to think about the care that we will want in the near future….if we got involved could we advocate for more social interaction and personalized intervention….more music for ALL?   When I put myself in one of those beds I start screaming NOOOOOOOOOOO  don't leave me here and then I realize there are changes that can and must be made.

Tuesday, June 10, 2014

My Candle is Burning

Wednesday, June 4, 2014….Summer-e out there!  Muggy and hot and I love it!

Today one of Residents, who will turn 107 in the fall, was very quiet…sitting alone in her wheelchair, off by herself.  Normally she is cruising up and down the halls chatting with everyone.  I sat next other (she is VERY hard of hearing and asked how she was.  She waited a minute and said, "I am very sad today, I learned that I am blind."  I felt terrible for her and asked her if she had been to the Dr. and she said no.  So I asked her, how did she know she was Blind and she started chuckling and said, "cause I can't see a thing!"  OMG OMG OMG I selfishly want her to live forever.

Tuesday, June 10, 2014…another hot and muggy day…yea!

Yesterday I was told when I arrived at work that my Led Zeppelin loving Patient, "J" was transitioning.  No surprise but I am never ready.  When I get complacent about Death, then I am in the wrong place, personally and I am not doing my work properly.  The Patient's Brother came to me and introduced himself and thanked me, on behalf of the Family for spending so much time with him and in particular, playing "Stairway to Heaven" for him last week.  As the word spread, many Residents needed lost of hugs and conversation.  One Resident told me he had just shook his hand earlier and patted his shoulder.  I reminded him that it was time well spent and I am sure it made a difference to him.  He just smiled at me…..still so hard to accept.

When I got home I played my Singing Bowl, lit my candle for him and meditated for a while.  Poor Tad, when he comes home and asks, "how was your day", I always bombard him with events good and bad, and he always listens.  He is my rock, my humor, my "back to normal".

This morning as I was drinking my coffee, I received an email from another Facility where my peeps are….Mr. A passed away early this morning.  I almost typed, "he was my favorite" but I really love them all and it's difficult to let any of them go.

On a happier note, my Companion has been doing wonderfully all week and very responsive to Music. Lots of smiles and foot tapping.  She is my ray of sunshine when I start to feel down…what she endures each hour is hard to imagine.  So my Candle is burning for Mr. A...


Friday, May 30, 2014

Musical Choices

 Friday, May 30, 2014….I think Winter is trying to make a come-back?  Rainy and very Cool….I refuse to complain!

Yesterday I got an email from my Supervisor of the Facility, telling me one of my Hospice Patients, a young man, loves Led Zeppelin and any other Classic Rock Band…I quickly downloaded "Stairway to Heaven" and then gave my choice some thought….should I play it because the title is suggestive, especially in his position?  So I decided to play a few Beatles, Dylan and so on and he loved it….I told him I only had one Zeppelin song, gave him the title and he looked at me (he is unable to speak) and shook his head yes with a big tear down his cheek.  I can tell you, I almost could not play and as I write this to you I feel that emotion coming to the surface again.  

I pretty much botched up the tune because I hadn't practiced it, but it was simple enough to play the theme and get through it.  I finished his Session with "I will Always Love You" Dolly Parton/Whitney Houston, which I always play for him before I leave and pointed to my heart and he just looked at me and shook his head again.  Wow, what an afternoon.

Yesterday was one of those days when I needed to take extra care of my Spirit.  When I got home I used my Singing Bowl and did a long Meditation.  It makes such a difference when I stop and restore myself…if not my Intention during a Session is weak and purposeless.  

Wednesday, May 28, 2014

Alive Inside

Wednesday morning…May 28, 2014……cloudy, humid and showers on the way….a perfect summer morning :)

I received an email yesterday morning from the Daughter of my Companion, telling me her Mom had been pretty un-responsive for days.  I had not seen her for a week, due to the Holiday Weekend.  When I arrived she was very unresponsive and I was determined to "wake up her brain" as well as her Spirit.  After 40 minutes of Harp Music…..I finally got a response and after a walk outside, I took her to the Dining Room and played piano for her.  As I am playing I hear her stomping her foot on the wheelchair.  she is trying to get my attention.  I look over and she is Conducting my Music!!!  the physical movement of her raising her arm and moving it is something no one has seen her do in months.  So here I am taking a video with one hand and trying to play piano with my left….I was able to share the video with her family.  I think the other amazing thing is she responded to my instructions.  When I stopped playing to dig out my phone to record, she lowered her arm, but as I played again I told her to Conduct my Music….and she did!!!!!  She is "Alive Inside"



Wednesday, May 21, 2014

Wednesday :)

Wednesday, May 21st….yep, warm, cloudy and maybe a storm!

Today I played at a Facility that I am so compassionate about.  I love all the Staff and I am thrilled they understand the profound benefits that their Patients receive through Therapeutic Music.  Also, I feel their Patients are more in need of the Service.  Most are wards of the State and few have family or friends visiting.  They are long-term nursing patients, palliative care and hospice.

Today I experienced a chance meeting with a Music Therapist while I was playing for "his" patient.  He works for Hospice and comes to see this Patient as a MT, which is a Bachelor's Degree and very "hands-on" Therapy.  Mine is not a Degree, but a Certification and we do not physically interact with a Patient, we are Therapeutic Musicians or Clinical Musicians and we are non-obtrusive in the sense that we let the Music and our "intention" have the impact on the Patient.  Although very different, we are very much the same.  Our goals are to be part of a tool-box of healing modes.  Therapeutic Music is not a cure, it is part of the mind-body-spirit healing that can take place.  I was so thrilled to have the time to chat with the MT, he could not have been nicer and more professional.  He was so happy to know that "his" patient received services when he could not be with her.

He noticed she was very engaged with the music and commented on how "familiar" music seemed to catch her right away.  He does a lot of improv on the guitar,  but suggested he may start his sessions with more familiar music and then transition to improv.

I went to see Mr. A next and one of the Office Staff caught up with me and wanted to see the response….she got a real treat!  Mr. A was in the fetal position at the foot of his bed, unresponsive.  I played a couple tunes and nothing…..then I moved over to hymns, ones I know he loves.  He laid there singing with his eyes closed.  I wanted to cry…..another "hazard" in my job.  I told him he could sing better if he sat up, so slowly he managed to get into a sitting position on the side of the bed.  Did I mention this man can sing?  He has the most beautiful voice.  The Staff member sang several tunes with him….both of us very emotional.  THIS is why I love this facility…..the staff are the soul of the place, not the brick and mortar.

Mr. A's roommate was in a wheelchair, unresponsive…..until I played "Over the Rainbow"….he opens his eyes and watches me play…..again, very emotional.

From there I moved to the Day Room where there were 8 Patients waiting for lunch.  I love this group of Patients so much.  One does not communicate, except when I am there.  She sings "Amazing Grace" with the most beautiful voice….today one of the aides said, "what?  I didn't know she could even talk!"  Yep, Amazing Grace!  There is another patient that loves Elvis so when I play "Love Me Tender" she is just in tears and then smiles.  There is a young girl that emotionally grabs me every time.  She used to be very shy around me but now she just lights up when she sees the Harp.  She spends 10 minutes getting her wheelchair as close to me as possible.  I don't think she would ever want to touch the Harp but she loves to watch me play.  She always has a beautiful smile on her face when I ask her to sing along.  She rarely speaks, but sometimes she will act shyly and say "no" to singing…LOL

I would love nothing more than to stay all day and make music for them and the Staff, but my fingers give out and usually my stomach is screaming for food!!!

Tomorrow (Thursday) I am at another Facility and I know joy awaits me.  My life is so full and rich and I am so grateful for each day I can give this Service.  I think the only thing missing is food….I think they should provide Lunch!!!

Monday/Tuesday

Wednesday afternoon, May 21, 2014….warm, cloudy and maybe some storms :)

I'm sitting here this afternoon, reflecting on my last few Sessions with my Patients.  They are always so thought-provoking and emotional as well.

When I arrived to be with my Companion this week, she was non-responsive.  Very unlike her, especially when I play the Harp.  It seemed nothing could reach her.  I took her outside for a long walk, normally we talk about what the date is, what day of the week, the weather (she is blind and does not communicate )….but today…nothing.  I took her back to her room and played more Harp and I was playing "You are My Sunshine" and I see her foot start to move.  I look up and she is grinning like crazy.  That was the ticket….who knew?  the rest of the afternoon she was completely engaged with me and with music.  Yesterday was even better.  While I was chatting with her roommate, I noticed she was moving her leg and her arm like I have not seen in months.  I was so surprised that I took a Video for her Daughters to see, they both agreed they had not seen that amount of movement in months.  You never know what will reach a person's spirit and memories.  I am constantly and pleasantly surprised.

On this same day, the Facility was in "lockdown" due to the Flu on another Unit.  That means that all residents must stay in their Unit, all activities are canceled and meals are served in the rooms only.  I consider this one of the "hazards" of working in facilities…..no matter how well you take care of yourself, you are exposed to so much.  At the Nurse's Station I could hear one of the Residents yelling and cursing.  I know this Resident pretty well and rarely see him agitated this way.  I came out and told the Nurse I would get my harp in a bit and come play at the station….she laughed and said, "how about NOW?"  So I did, brought my Companion with me and we sat at the Station and the VERY first tune…he closed his eyes and started waving his arms around like an Orchestra Conductor….and if anyone spoke he said, "shhhhhh, she is playing music".  I stayed for about 30 minutes and he continued to be calm and restful.  The Staff is so appreciative, it makes a huge difference in their attitude and approach to the Patients.  Later in the afternoon I saw him again and I asked him if he enjoyed the Harp Music.  He was just as calm and peaceful and said, "yes, very much"  That was my Monday and Tuesday…..Wednesday (today) comes in another Blog!


Thursday, May 15, 2014

Balance of Emotions

Thursday Evening, May 15, 2014….cloudy, windy and a storm's a coming!!!!

Today I had a beautiful experience with a Patient.  It's a young man, in his 20s who was born with a terrible disability and can not communicate with words.  He does, however let you know what he's  interested in by facial expressions and hand gestures.  He has recently been placed in Hospice Care.

The first time I played my harp for him about halfway through my playing he motioned for me to turn on his TV….he was done with me.  The next time I just turned down the TV instead of turning it off and that seemed ok, but he kept turning his head away from me, clearly he did not like having me there.

Over these last several weeks, I have not approached him in his room.  He is sometimes out at the Nurses Station and I will just stop and talk to him and make no mention of music or my harp.  I have felt a sense of trust by doing this and today I entered his room and asked if he wanted me to play my Harp.  He just stared at me, no expression.  Then he slowly lifted his hand and made a motion to turn off the TV with his remote…..which I couldn't find anywhere.  After asking the Nurse for help, he was given his remote and he turned off his TV.

I decided to tell him the names of the Tunes before I played them.  I did a couple of things and then I asked if he liked Bob Dylan….he moved his eyes..that was a yes.  I played Blowin in the Wind and sang the chorus while I played.  I glanced at him and he had a tear on his cheek.  Ok….I almost lost it at that moment.  I did some Beatles, "In My Life" and I did "Sound of Silence".  I finished up with "I will Always Love You" and when I was done I looked at him and told him the name of the song and that I would always love him, my friend.  Another tear but this time I could not hold it back.  I just let it happen and told him I would be back to play for him again soon.

This was incredibly sad today, but at the same time I feel I made a friend and he had loved having music today.  So hard to balance my emotions.